The job of the oncology medical team is to put out the fire, stop the emergency, and save the patient’s life, said Diane Heditsian, Researcher and Patient Advocate, Breast Oncology Program, University of California, San Francisco, during the 2016 Cancer Survivorship Symposium.
“We’re doing a better and better job of that all the time,” said Ms Heditsian, a 2-time cancer survivor, “but we now owe it to the survivor to make sure that this saved life is a life worth living.” Given that approximately 50% of all Americans will be cancer survivors at some point in their lives, survivorship care is an important topic; however, it is complicated because every patient with cancer is different, with a unique set of challenges.
After her own active treatments ended, Ms Heditsian found it challenging to meet her survivorship needs, forcing her to change oncologists 6 times.
“When I finally got in to see my oncologist after being delayed for emergencies with active patients, I found that it was rushed, and the focus wasn’t always on me,” she said. “I finally realized that the problem wasn’t with the doctors, and it wasn’t with me having too many questions that needed answers; the problem was with the system.”
According to Ms Heditsian, it takes a group of providers to interact with the survivor. She now sees a primary care physician who is accessible, mindful of her health needs, and has a team to back him up. “I actually do still see an oncologist,” she added, “but I’m not sure why.”
Ms Heditsian shared the following list of suggestions for survivorship care:
The final day of active treatment can be one of the scariest days for cancer survivors, Ms Heditsian suggests. “You’re given a hug or a handshake, congratulated, and told to go back to your life, but there’s no plan, no guidance on how to avoid recurrence, and no safety net. Patients need help getting their body back to restored health.”
She advocates for a 12-week comprehensive rehabilitation program for every cancer survivor at the end of active treatment. Then, survivors need follow-up for life: this should include patient education, empowerment, and reminders to take an active role in their health.
“This will engage the patient in her care, which is the only way we will get sustainable health,” said Ms Heditsian.